Facebook support group for parents and guardians:
Facebook group for extended families, friends and professionals: https://www.facebook.com/groups/798280693609556/
Our public Facebook page: https://www.facebook.com/zellwegeruk/?fref=ts
Our friends at the GFPD are the global charity for Zellweger Spectrum Peroxisomal Disorder. Their support groups are larger and full of supportive people with a wealth of knowledge. They are our second home.
Band of Brothers (Dad’s only): https://www.facebook.com/groups/12872678722362
GFPD public page: http://www.thegfpd.org/