Families who have suffered the tragic loss of their child due to a peroxisomal disorder are very much still part of the Zellweger UK family. We are here to support bereaved families in any way we can. we here to talk and we offer peer to peer group bereavement sessions via zoom call. If you would like to join one of these, please email admin@zellweger.org.uk for further details.
We also offer grants of up to £250 for personalised memory jewellery for their child. Please email admin on the address above for more details.
There is also a support group available on facebook, that we highly recommend:
Bereaved parents of pbd kids https://www.facebook.com/groups/1639684009604575/