Sense is a wonderful national charity supporting and campaigning for people who are deafblind and those with sensory impairments. They offer high quality, flexible services across the UK, using skilled staff and a dedicated network of volunteers. They tailor the support they offer to the individual needs of each person so they can live as independently as possible and participate fully in the lives of their local communities.
Sense continue to support our conference weekends by providing an incredible group of volunteers to work with our children.
Our team here at Zellweger UK are hugely grateful for the support from the wonderful team at Sense.
Cruse supports Zellweger UK families at our conference weekends, for professional counseling service. They have helped us to enjoy the memories of our loved ones. There are around 70 Cruse areas throughout England and Wales. They are all working towards offering a range of services- but many do not have any paid staff and are run by very committed volunteers- so as such their services may be slightly limited in your area.
Please check out their website for more details https://www.cruse.org.uk/get-help
Bnatural is a family run business based In Gloucestershire. They donate 5% of their internet and cash sales to ZUK. Here is a little background information they have provided about the business.
As a family, we are extremely passionate about CBD. My wife, both the children and myself use this oil on a daily basis. In the months leading up to our launch we had spent many relentless hours looking through websites, Lab Reports, which many did not offer. Our aim is to try and provide the highest quality CBD oil at a realistic price. We pride ourselves on transparency and honesty.
We work closely with our extractors in Europe to ensure our customers only get the best and work closely with CannaPro who are one of the leading regulatory bodies for the industry. We are also a part of a small collective of businesses who also strive for compliance.
We are also working on developing products thought of and designed by our 9 year old daughter, who is very much a part of the day to day running of the business. She is one of the reasons we set up because the oil we used helped her with her anxiety, daily struggles and to cope with the pressure she faced with additional educational needs.
Here is a link to our website. www.bnaturaloil.co.uk
The Society for the Study of Inborn Errors of Metabolism (SSIEM), a registered charity and limited company, was founded in 1963 and exists to promote exchange of ideas between professional workers in different disciplines who are interested in inherited metabolic disease. The aims are to foster the study of inherited metabolic disorders and related topics.
“Inherited metabolic disorders refer to different types of medical conditions caused by genetic defects, most commonly inherited from both parents, that interfere with the body’s metabolism. These conditions may also be called inborn errors of metabolism”
The SSIEM is a membership organisation with over 1447 members in 78 different countries.
The Society pursues its aims by arranging scientific meetings and training events, producing publications Journal of Inherited Metabolic Disease (JIMD) and JIMD Reports, offering scholarship, grants and awards and in other ways considered appropriate by the Council. www.SSIEM.org
We’ve partnered with FreeWills to provide all our supporters with
the opportunity to make their own fully comprehensive Will for free. You
can make your personalised Will online in three simple steps, from the
comfort of your own home at https://www.freewills.co.uk/charity/zellweger and with live support from their Will specialists.
Maximus Foundation UK – Changing lives one grant at a time.
Whether it’s helping someone overcome the loss of a loved one or supporting the most vulnerable people in our communities.