Team Isabelle

On the 25th August2019, Sarah & Ryan Cowley, Stephanie & Adam Curry and their families and friends completed Coventry’s 5k big fun run for Team Isabelle and Teddy. It was a scorching hot day and they done incredibly well.                               On the 30th August 2019, Team Isabelle has been raised money for Zellweger UK at Sainsbury’s Mere Green. We served brunch for all the staff and raised a total of £315. We have added this to the fun run money and the grand total is £2360! Thank you to everyone who took part in the fundraisers and who donated. It has given us a focus and so much positivity at a time when we need it most. Isabelle achieved so much whilst she was alive and still continues to bring out the best in people 💜

Zellweger UK’s 2nd presentation at the University of Exeter

  On 26th November, 2018, I was kindly invited back by Professor Michael Schrader and the team at Schrader Lab to give a presentation about Zellweger UK and my son Cameron to their 73 students from the module “Cell Biology of Disease” at the University of Exeter.

Ali and Tash’s 27 mile – 3 County – 4 Peak Challenge

  Crossing counties in honour of Cam, for Zellweger UK and the children coping with the same degenerative childhood disease. On Saturday 21st July, 2018 I – alongside my very good (and extremely patient!) friend of a quarter of a century Ali – embarked on a 27 mile trek across 3 counties, up to the peaks and back down of four major hills in the South West, They say you learn something about yourself on these kinds of challenges… it turns out I’m a complete and utter coward! Over the course of the day I built up an extensive list of things I’m terrified of, starting with the already firmly established cows, to the more newly acquired ownerless dogs, getting lost, roads, cars… mopeds… hills!

Our 2018 ZUK Family Conference 

          The northern foothills of Dartmoor provided the stunning backdrop for the fourth annual Zellweger UK Family Conference on 6-8th July when 24 families came together for two sun-drenched days at the Manor House Hotel in Okehampton, Devon. 

2017 Family Weekend

On the 19th August 2017 we kicked off our third family meet-up and first organised weekend event, with a family day at the Cricket Green School. A big thank you to headteacher Mrs. Celia Dawson and everyone at Cricket Green School for the use of such a lovely school and grounds. The hard work and planning that our event organisers Stephanie Barnes and Barry McGiir had put in, with the help of their team of volunteers, was evident the second we walked through the door. The decorations were a homage to Zellweger UK with green and purple giving everyone a warm and cheerful welcome.

Zellweger UK Meet-Up 2016

Bringing our families together in Birmingham for a second time! In June 2016, we had our second ever UK family meet up, kindly organised again by Michelle and supported by our team here at Zellweger UK. It was a wonderful chance to catch up with some of our families from last year, and to meet some fantastic new families;

Our First Zellweger Family Meet-up

On the 19th September 2015, our UK families got together for their very first ZSD family meet up, kindly organised and hosted by Michelle Thompson. Our families spent the day at Synergy at Calthorpe Academy in Birmingham, which was kindly donated for free by Andy. Not only did families get the chance to connect, but we had speakers from around the UK.