For day EIGHTEEN of our Zellweger UK Advent Calendar, please meet a very special and beautiful little girl, Rowan. Look at those adorable little cheeks! 

This is our baby girl Rowan. This picture was taken on her first outing to the local park, I had to vocally fight a Consultant to ‘allow’ us to have Rowan at home, following her diagnosis. Rowan loved being at home, she loved light, the sunlight & being out & about….x