I’m sure I have this story wrong but the principle is the same so here goes……
You book a holiday to Paris. Its somewhere that’s been on the ‘to do’ list for a while so you’re really looking forward to it. You research the best restaurants, places to visit, plan your day trips to visit the Eiffel Tower and Notre Dame.
You have packed your beret, stripy t-shirt and string of garlic, and you’re now boarding the plane after sipping Champagne in the airport bar……when in Rome….
The airhostesses go through the safety briefing and once you’re up in the air the Captain comes on the tannoy to introduce himself. He explains there’s good weather conditions, confirms the flight time and gives an ETA for arrival into Holland.
Wait……Holland?! You booked Paris! You planned for Paris! Your annoyed, but there’s fuck all you can do about it now.
You disembark the plane and make your way to your hotel. As you travel, you realise how pretty Holland is. You take to google to research and put together some new plans. You see the beauty of the long canals and tulip filled gardens. You plan new trips to Anne Frank House and The Red Light District… maybe you even get high!
You enjoy Holland. It wasn’t what you had planned but you loved it.
….You get the gist of it right?
After we discovered Teddys hearing loss, and again after his diagnosis of a Zellweger Spectrum Disorder (ZSD)- there were two people who put this to me- my sister being one of them. It’s something we laugh about now- she knows people who use this and love it- me however….not as much.
Don’t get me wrong, to a certain degree I agree with it. We didn’t plan to have a child who would have complex needs and who wouldn’t live forever; but we did love him, all of him. We adapted to our new life and I like to think we made the absolute most of the time we had with him.
But for fucks sake….we wanted to go to Paris. We wanted Teddy…..healthy…..not suffering….still here with us now. So screw you Holland…..pass me a bloody splif!