Labour Day

It was March 2017 when I found out I was pregnant again. I had been taking the recommended higher dose of Folic Acid which in theory should help lower the risk of another neural tube defect so we were feeling fairly confident- surely, we had had our bout of bad luck?! Again, it was another…

Louis

Friday 2nd December 2016, Adam and I arrived at Delivery Suite at 10:30 ready to have our baby. We were under the impression I should have delivered within 24 hours, but it seems the only effect the induction medication had on me initially, was to give me the runs! Fantastic! Then add the extra anxiety…

20 Week Scan- Nothing to be Worried About, Right?

My pregnancy was as plain sailing as they come, zero morning sickness, no cravings, minimal weight gain (which is just as well because I’m no size zero!). Me and Adam sat in the waiting area before my 20 week scan discussing how the ‘nervous’ one should be the twelve weeker, not this one…. Talk about…

It’s All About Me!

So I am Steph, a 33 year old Nurse from Liverpool. To be honest, there’s not an awful lot to say about my childhood and early adult life- which is a good start to an interesting read! At home was my Mum, Dad, Sister- Claire and Brother- Nick and we had a very bog standard…

Intro

Hi everyone, First of all, welcome to my blog ‘Take a Walk in my Shoes’, which will be about the rollercoaster of life- well my life!The main reason I have decided to do this is for a bit of self-help. I don’t know what the right way is to deal with life’s events. But what…

2019 ZUK Family Conference

So it’s that time of year again, no I don’t mean Christmas. It’s the Zellweger uk annual family conference. A weekend filled with fun & games for all, fantastic speakers and special time with my ZUK family.This is my 2nd year going to the conference but I’m overjoyed to be a part of the organisation…

Exercise With Ezra

Exercise with Ezra Massive thank yous to all our incredible family and friends, without you guys we could not have done it. ❤ A thousand thank yous to anyone who came, supported, donated and contributed in any way big or small! Your wonderful generosity will never be forgotten by all of us and will make…

Team Isabelle

On the 25th August2019, Sarah & Ryan Cowley, Stephanie & Adam Curry and their families and friends completed Coventry’s 5k big fun run for Team Isabelle and Teddy. It was a scorching hot day and they done incredibly well.                               On…

Zellweger UK’s 2nd presentation at the University of Exeter

  On 26th November, 2018, I was kindly invited back by Professor Michael Schrader and the team at Schrader Lab to give a presentation about Zellweger UK and my son Cameron to their 73 students from the module “Cell Biology of Disease” at the University of Exeter.

Ali and Tash’s 27 mile – 3 County – 4 Peak Challenge

  Crossing counties in honour of Cam, for Zellweger UK and the children coping with the same degenerative childhood disease. On Saturday 21st July, 2018 I – alongside my very good (and extremely patient!) friend of a quarter of a century Ali – embarked on a 27 mile trek across 3 counties, up to the…