Intro

Hi everyone, First of all, welcome to my blog ‘Take a Walk in my Shoes’, which will be about the rollercoaster of life- well my life!The main reason I have decided to do this is for a bit of self-help. I don’t know what the right way is to deal with life’s events. But what…

2019 ZUK Family Conference

So it’s that time of year again, no I don’t mean Christmas. It’s the Zellweger uk annual family conference. A weekend filled with fun & games for all, fantastic speakers and special time with my ZUK family.This is my 2nd year going to the conference but I’m overjoyed to be a part of the organisation…

Exercise With Ezra

Exercise with Ezra Massive thank yous to all our incredible family and friends, without you guys we could not have done it. ❤ A thousand thank yous to anyone who came, supported, donated and contributed in any way big or small! Your wonderful generosity will never be forgotten by all of us and will make…

Team Isabelle

On the 25th August2019, Sarah & Ryan Cowley, Stephanie & Adam Curry and their families and friends completed Coventry’s 5k big fun run for Team Isabelle and Teddy. It was a scorching hot day and they done incredibly well.                               On…

Zellweger UK’s 2nd presentation at the University of Exeter

  On 26th November, 2018, I was kindly invited back by Professor Michael Schrader and the team at Schrader Lab to give a presentation about Zellweger UK and my son Cameron to their 73 students from the module “Cell Biology of Disease” at the University of Exeter.

Ali and Tash’s 27 mile – 3 County – 4 Peak Challenge

  Crossing counties in honour of Cam, for Zellweger UK and the children coping with the same degenerative childhood disease. On Saturday 21st July, 2018 I – alongside my very good (and extremely patient!) friend of a quarter of a century Ali – embarked on a 27 mile trek across 3 counties, up to the…

Our 2018 ZUK Family Conference 

          The northern foothills of Dartmoor provided the stunning backdrop for the fourth annual Zellweger UK Family Conference on 6-8th July when 24 families came together for two sun-drenched days at the Manor House Hotel in Okehampton, Devon. 

2017 Family Weekend

On the 19th August 2017 we kicked off our third family meet-up and first organised weekend event, with a family day at the Cricket Green School. A big thank you to headteacher Mrs. Celia Dawson and everyone at Cricket Green School for the use of such a lovely school and grounds. The hard work and…

Zellweger UK Meet-Up 2016

Bringing our families together in Birmingham for a second time! In June 2016, we had our second ever UK family meet up, kindly organised again by Michelle and supported by our team here at Zellweger UK. It was a wonderful chance to catch up with some of our families from last year, and to meet…

Our First Zellweger Family Meet-up

On the 19th September 2015, our UK families got together for their very first ZSD family meet up, kindly organised and hosted by Michelle Thompson. Our families spent the day at Synergy at Calthorpe Academy in Birmingham, which was kindly donated for free by Andy. Not only did families get the chance to connect, but…